I’m sure everyone has heard the international heartbreaking story of Charlie Gard by now. He’s a little precious 11-month-old baby born in Britain who desperately needs important medical treatment for a rare genetic condition known as mitochondrial DNA depletion syndrome.
The doctors at Ormand Street Hospital want to remove his ventilator. However, his ventilator is what is keeping him alive. His parents have waged a 4-month legal battle to prevent the hospital from removing his ventilator. The decision to have or not have a ventilator is up to the courts sadly, not Charlie’s parents.
Charlie has already survived three court decisions to remove his ventilator, thanks to the determination of his parents, interventions from the Pope Francis and President Trump.
Now, there might even be ‘new evidence’ of experimental therapy. In addition, Congress has made Charlie a permanent citizen, in hopes he can come to America for his much needed treatment.
H/T Daily Mail:
Charlie Gard is being given legal and permanent residence in the US by Congress in order to allow him to fly to America for treatment.
Jeff Fortenberry, Republican U.S. Representative for Nebraska, tweeted: ‘We just passed amendment that grants permanent resident status to #CharlieGard and family so Charlie can get the medical treatment he needs.’
Rep. Kevin Yoder added,
It is the latest move by US lawmakers who are determined to keep up the pressure on Great Ormond Street doctors in the on-going international political row over the 11-month-old’s medical care.
But legal sources said Charlie is the subject of a High Court order and it made no difference what passport he held.
And last Friday, the judge made it clear it would be illegal for Charlie to travel to America without his permission.
The parents’ barrister Grant Armstrong said the parents were of the view that legally it was up to the hospital to change its mind and allow Charlie to be transferred.
But Mr. Justice Francis said the effect of the various rulings meant the court’s permission was required.
He said: ‘It would be entirely wrong for him to be transferred without my being involved.’
He added that if the hospital did change its mind to allow the baby to go, he would be ‘bound to agree’.
MailOnline previously reported how the hospital could prevent Charlie’s parents from taking him to the US.
If doctors believe that a parent will cause suffering to their child, police can be called in to arrest them using Powers of Protection legislation.
That’s amazing in itself, since Charlie’s two parents just want what’s best for him – world class medical treatment to make him well.
Charlie’s parents recently released a new photograph of their little boy where he appears to be looking at a toy to debunk his doctors’ claims he is blind.
Connie Yates and Chris Gard say the poignant image, taken last Friday, is proof that Great Ormond Street Hospital is wrong to write off their 11-month-old son.
His doctors say he is blind, deaf, unable to move and badly brain-damaged and believe it is ‘cruel’ to let him live any longer.
THEN MORE NEWS CAME….
The Mail can reveal that his British clinicians emerged from a crucial summit about his fate yesterday still convinced he should be allowed to die.
They apparently failed to be persuaded by American neuroscientist Dr. Michio Hirano, who flew back to New York last night.
Dr. Hirano and an expert from the Pope’s hospital in Rome spent five and a half hours trying to talk round Charlie’s doctors.
Last night his mother Connie Yates revealed Charlie was set to undergo more tests.
They could decide if he is fit to undergo experimental treatment on his brain condition.
She added: ‘Our gorgeous baby boy is still stable. We are at his bedside and feel satisfied he is not suffering or in any pain.
‘As Charlie’s loving parents, we are doing the right thing for our son in exploring all treatment options.’
Dr. Hirano, from the Columbia University Medical Center, is offering to try the experimental therapy. Dr. Hirano, is an expert at the forefront of researching Charlie’s rare form of mitochondrial disease, and told the High Court last week there was a ‘small but significant’ chance of improvement.
But that was before two brain scans that the 11-month-old had on Sunday, his first since April. He had an MRI scan and an electroencephalogram (EEG) to monitor brain activity for more than 30 minutes. Neither the results, nor Dr Hirano’s view of them, have been made public, but were central to yesterday’s meeting of experts at Great Ormond Street Hospital (GOSH) in London.
Dr. Hirano, the Rome doctor and Miss Yates were all hoping to convince GOSH doctors to let them try the treatment.
In a press statement released on behalf of the family,
So while Charlie has been granted as a legal permanent resident by US Congress, and been examined by a specialist in mitochondrial disease, all of his decisions are decided in a court of law.
After witnessing ALL of THIS, is this really the kind of healthcare program that the United States still wants?
Our prayers our with Charlie Gard and his family.